Community support for the Blau Syndrome Foundation
July 10, 2019
Troy Townsin, whose daughter has the rare Blau Syndrome and Mallin Jiang, international training and development officer at Royal Roads University, were interviewed about Royal Roads community support for the Cure for Blau Syndrome Foundation.
Here is an excerpt from the article:
The more patients around the world that are identified with Blau syndrome greatly increases the potential for obtaining biopsies, natural history and information on disease progression, which is crucial to furthering research, Townsin explained.
‘Having Royal Roads involved locally and having the benefit of that global connection in compiling data is phenomenal,’ he stressed. ‘I can’t say enough about how grateful we are and what a difference that makes.’